Out into the light

Having endured the hardest, darkest, winter to date, we’re counting down the minutes to extra sunlight and Spring. Our garden-loving girl’s favorite season is blooming — flowers don’t last long in our yard, but they do on our table! 

Today we were up at Seattle Children’s for a routine follow-up with Rheumatology. Overall Emma is doing great. She bravely sails through her weekly blood draws and daily meds. We’re so grateful for her stable labs, and don’t take one day with her for granted. 

But as she’s tapered down from 12ml to 2ml of Prednisone (YAY!), the spots on her skin have come back in full force.

It’s really heartbreaking.

Would you pray with us that her skin will heal? It’s awful to see. We’ve never known Emma without this condition, but just because we’re used to it doesn’t mean it’s not deeply upsetting.

But as for me, I watch in hope for the Lord, I wait for God my Savior; my God will hear me ... Though I sit in darkness, the Lord will be my light … He will bring me out into the light; I will see his righteousness.
—Micah 7:7v9